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Sorry for the delay in posting a progress update.
Saw Dr. Zu on March 12. Good report: weight is up 2 lbs. from last month! WBC looks good - still low, but within an acceptable range. Zu thinks I am doing great. I also received a Sandostatin treatment. I am tolerating the treatment well, save for some minor side effects.
I continue to take Afinitor daily and, like the Sandostatin, I am tolerating the medication well.
For those unfamiliar with Afinitor, here is what I take it for:
AFINITOR is a kinase inhibitor indicated for the treatment of:
• adults with progressive neuroendocrine tumors of pancreatic origin (PNET)
that are unresectable, locally advanced or metastatic. The safety and
effectiveness of AFINITOR in the treatment of patients with carcinoid
tumors have not been established. (1.2)
• pediatric and adult patients with tuberous sclerosis complex (TSC) who
have subependymal giant cell astrocytoma (SEGA) that requires
therapeutic intervention but cannot be curatively resected. The
effectiveness is based on demonstration of durable objective response, as
evidenced by reduction in SEGA tumor volume. Improvement in disease related
symptoms and overall survival in patients with SEGA and TSC has
not been demonstrated. (1.5)
Next up:
CT Scan of chest, abdomen, and pelvis on April 3.
Blood work on April 5.
Appointment with Dr. Zu on April 9.
I am doing great. Now that track season has settled down a bit, I have gotten back to running regularly. Christine and I love each other immensely, I love my job, and am surrounded by wonderful people every day.
Thanks to all for your continued prayers, encouragement, friendship, and support.
