An Update

It has been too long since I have updated my status.
So, here goes:

I am well. I have maintained and actually gained weight! Up 5 pounds since September. Of course, my limited physical activity may play a part in that! In addition to working full-time, I have been tutoring four hours a week at the SDSU Community Reading Clinic, and finishing up a Reading Specialist Credential. Three weeks ago, I sat for my Reading Specialist Comprehensive Exam (results this week!), a three-day, insanely intense take-home exam. Three written responses in APA format with source information integrated into the response, and with a limit of 15 pages. Since August, I have literally written over 50 pages! I am finishing up tutoring this week as well as an independent study that will round out my Reading Specialist Credential.

Yesterday, Christine and I attended a wonderful "symposium" at UCSD on Tuberous Sclerosis Complex where we discovered that a new comprehensive TSC Clinic has opened at Rady Children's Hospital! Dr. Trauner shared that the clinic has started a clinical trial for Afinitor, my primary medication for the last three years. Dr. Zu is Da Man, eh? He had the wisdom and foresight to put me on Afinitor three years ago!

I will most certainly avail myself of the comprehensive clinic at Rady's!

San Diego
Rady Children’s Hospital San Diego (RCHSD)/UC San Diego (UCSD) Comprehensive TSC Clinic
Director: Doris A. Trauner, MD
Co-Director: Keith K. Vaux, MD
Coordinator: Cheryl Orphan, RN
Age Range Seen: Children and Adults

To read more about TSC, go to: TSC Alliance

What's up next:
-Blood work Friday
-Appointment with Dr. Zu, December 15
- Travel to Massachusetts to see family: December 22!

Thanks for your love and support!